Levi and Violet

Levi is an adult with disabilities that include cerebral palsy and autism. He is non-verbal, uses a wheelchair and relies on support for all aspects of daily life. He is outgoing and determined. Levi’s mum, Violet, told the Royal Commission about the neglect Levi experienced in a group home.

Levi’s first time living in supported accommodation was a few years ago – he stayed only six months.

In that short time he lost more than 10 kg. He also developed a pressure sore on his coccyx. Staff did not acknowledge either the weight loss or the pressure sore, leading Violet to arrange for an external community nurse to deliver Levi’s treatment.

Neighbours of the group home texted Violet on several occasions to express their concern for Levi’s welfare. They could hear him, from inside their homes, knocking on the walls for hours during the early morning.

During this period, in an attempt to help Levi settle, his psychologist changed his antipsychotic medication from PRN – taken as needed – to daily. Later, after Levi had already moved to new accommodation, Violet discovered that staff never actioned this change to his medication.

At Christmas, Levi was out with his family. When Violet dropped him home, there was only one staff member rostered on. Levi and at least one other resident required a two-person hoist to move between the wheelchair and the bed and for personal care. It took ‘many attempts’ for Violet and the distressed staff member to ‘encourage’ nightshift staff to come to the house.

Violet shared information with the house manager and accommodation provider each time an issue arose.

‘I expressed my concerns weekly. On most occasions I was unaware of any changes or actions that had been taken to address the situation or my concerns and at other times I was told things had been changed or managed but with no obvious outcome.’

Violet believes that part of the problem was that the house had at least four different managers, who were looking after at least two other residences at the same time. Staff turnover was also high.

Levi moved to a new group home with a different service provider and he is now doing well.

‘The difference in their approach and his well‐being is amazing,’ Violet said. ‘He has gained nearly 10kg in weight since moving in and has returned to [reduced medication]. He is much happier and content in himself and the staff are in touch regularly with any concerns or questions.’

Violet would like to see a focus on ensuring advocacy for ‘people with severe and complex needs’.

‘I am relieved that I was able to be part of my son’s life to prevent further mistreatment of him and to help him to find a home run by people who understand and respect him and his different needs.’