Public Hearing 6, Sydney - Day 4

Day
4
Date
Location
Sydney
Hearing
Public hearing 6: Psychotropic medication, behaviour support and behaviours of concern

Exhibits

6-20 - STAT.0155.0001.0001 - Statement of Professor Julian Trollor
6-24 - STAT.0154.0001.0001, [EXP.0022.0001.0005] - Statement of Dr Jeffrey Chan
6-25 - STAT.0150.0001.0001 - Statement of Graeme Head AO
6-26 - STAT.0144.0001.0001 - Statement of Donna Lockyer
6-27 - STAT.0145.0001.0001 - Statement of Elizabeth Denny
6-28 - STAT.0151.0001.0001 - Statement of Shayna Smith
EXHIBIT 6-09 - SUFY.9999.0001.0001 - Joint submission of Dianne Toohey and Kathy Kendell
Exhibit 6-19 - STAT.0166.0001.0001 - Statement of Professor Karen Nankervis
Exhibit 6-19.01 - EXP.0038.0001.0029 - Curriculum vitae of Professor Karen Nankervis
Exhibit 6-19.02 - EXP.0038.0001.0001 - K. Nankervis et al., ‘Interactions of residents who have intellectual disability and challenging behaviours’, International Journal of Disability, Development and Education
Exhibit 6-19.03- EXP.0038.0001.0017 - M. Vassos and K. Nankervis, ‘Investigating the importance of various individual, interpersonal, organisational and demographic variables when predicting job burnout in disability support workers’, Research in Developm
Exhibit 6-19.04 - EXP.0038.0001.0034 - S. Wardale, F. Davis, M. Vassos and K. Nankervis, ‘The outcome of statewide audit of the quality of positive behaviour support plans’, Journal of Intellectual and Developmental Disability
Exhibit 6-19.05 - EXP.0038.0001.0046 - K. Nankervis, A. Rosewarne and M. Vassos, ‘Why do families relinquish care? An investigation of the factors that lead to relinquishment into out-of-home care’, Journal of Intellectual Disability Research
EXHIBIT 6-21 - STAT.0157.0001.0001 - Statement of Dr Maya Luks
EXHIBIT 6-22 - RCP.9999.0002.0272 - Statement of Associate Professor John Allan
EXHIBIT 6-23 - RGP.9999.0001.0001 - Response of Dr Ayman Shenouda
EXHIBIT 6-24.01 - CTD.7200.0002.0943 - Positive Behaviour Support Capability Framework
EXHIBIT 6-24.02 - CTD.7200.0002.1227 - Compendium of Resources of Positive Behaviour Support - A Guide for Behaviour Support Practitioners
EXHIBIT 6-24.03 - CTD.7200.0002.1118 - Restrictive Practice Guide - Chemical Restraint
EXHIBIT 6-24.04 - CTD.7200.0002.1141 - Restrictive Practice Guide - Children and Young People
EXHIBIT 6-24.05 - CTD.7200.0002.1097 - Management of Lodged Behaviour Support Plans
EXHIBIT 6-24.06 - CTD.7200.0002.0936 - Your Introduction to Behaviour Support brochure
EXHIBIT 6-24.07 - CTD.7200.0002.1059 - Your Introduction to the Positive Behaviour Support Capability Framework brochure
EXHIBIT 6-24.08 - CTD.7200.0002.0932 - Coronavirus (COVID-19): Behaviour support and restrictive practices - Fact sheet
EXHIBIT 6-24.09 - CTD.7200.0002.0993 - Behaviour support and restrictive practices - Fact sheet
EXHIBIT 6-24.10 - CTD.7200.0002.1003 - Implementing providers: Facilitating the development of behaviour support plans that include regulated restrictive practices - Fact sheet
EXHIBIT 6-24.11 - CTD.7200.0002.1005 - Self-Assessment Resource Guide
EXHIBIT 6-25.01 - CTD.7200.0002.0846 - Disability Reform Council Communique
EXHIBIT 6-25.02 - CTD.7200.0002.0859 - Roadmap to national consistency in restrictive practice regulation
EXHIBIT 6-25.03 - CTD.7200.0002.0869 - Meeting of Commonwealth, State and Territory Disability Ministers - Statement
EXHIBIT 6-25.04 - CTD.7200.0002.0844 - Draft principles of nationally consistent authorisation of restrictive practices
EXHIBIT 6-25.05 - CTD.7200.0002.0848 - Letter from NDIS Commissioner to NSW providers regarding unauthorised uses of restrictive practices
EXHIBIT 6-25.06 - CTD.7200.0002.0851 - Unauthorised use of restrictive practices - NSW poster
EXHIBIT 6-25.07 - CTD.7200.0002.0852 - Letter to NSW NDIS Providers - Request for Information - Unauthorised use of restrictive practices
EXHIBIT 6-25.08 - CTD.7200.0002.0855 - Request for Information (NSW) template
EXHIBIT 6-25.09 - CTD.7200.0002.0856 - Letter to NSW NDIS Providers - Requirement to demonstrate compliance - Section 11
EXHIBIT 6-25.10 - CTD.7200.0002.0860 - Requirement to demonstrate compliance (NSW) template - Section 11
EXHIBIT 6-25.11 - CTD.7200.0002.0861 - Letter to NSW NDIS Providers - Requirement to demonstrate compliance - Section 12
EXHIBIT 6-25.12 - CTD.7200.0002.0864 - Requirement to demonstrate compliance (NSW) template - Section 12
EXHIBIT 6-25.13 - CTD.7200.0002.0865 - Letter from NDIS Commissioner to SA providers regarding unauthorised uses of restrictive practices
EXHIBIT 6-25.14 - CTD.7200.0002.0875 - Unauthorised use of restrictive practices - SA poster
EXHIBIT 6-25.15 - CTD.7200.0002.0879 - Letter to SA NDIS Providers - Request for Information - Unauthorised use of restrictive practices
EXHIBIT 6-25.16 - CTD.7200.0002.0870 - Request for Information (SA) template
EXHIBIT 6-25.17 - CTD.7200.0002.0871 - Letter to SA NDIS Providers - Requirement to demonstrate compliance - Section 11
EXHIBIT 6-25.18 - CTD.7200.0002.0874 - Requirement to demonstrate compliance (SA) template - Section 11
EXHIBIT 6-25.19 - CTD.7200.0002.0876 - Letter to SA NDIS Providers - Requirement to demonstrate compliance - Section 12
EXHIBIT 6-25.20 - CTD.7200.0002.0883 - Requirement to demonstrate compliance (SA) template - Section 12
EXHIBIT 6-25.21 - CTD.7200.0002.0886 - Letter to SA NDIS Providers - Requirement to demonstrate compliance - Section 13
EXHIBIT 6-25.22 - CTD.7200.0002.0889 - Requirement to demonstrate compliance (SA) template - Section 13
EXHIBIT 6-25.23 - CTD.7200.0002.0884 - Letter to VIC, QLD, TAS, ACT & NT NDIS Providers - escalation of compliance activity
EXHIBIT 6-25.24 - CTD.7200.0002.0890 - Total Reportable Incidents by category and type - chart
EXHIBIT 6-26.01 - QLD.0011.0026.0163 - Clinical Governance Framework
EXHIBIT 6-26.02 - QLD.0011.0026.0174 - An Action Plan: Meeting the health needs of people in care with a disability
EXHIBIT 6-26.03 - QLD.0011.0026.0220 - Department of Communities, Disability Services and Seniors responsibilities under the Action Plan
EXHIBIT 6-26.04 - QLD.0011.0026.0233 - Bundle of correspondence from Director-General of the Department of Communities, DSSA Chief Executive Officer, NDIAC, NDIS Quality and Safeguards Commission
EXHIBIT 6-26.05 - QLD.0011.0026.0237 - Clarification of purpose of medication form
EXHIBIT 6-26.06 - QLD.0011.0026.0239 - Short Term Approval (STA) - Application Form
EXHIBIT 6-26.07 - QLD.0011.0026.0243 - Short Term Approval - Decision making tool
EXHIBIT 6-26.08 - QLD.0011.0026.0256 - Table of restrictive practices requirements
EXHIBIT 6-26.09 - QLD.0011.0026.0257 - Form 6-4 Notification of Approval or Consent to the Use of Restrictive Practices
EXHIBIT 6-26.10 - QLD.0011.0026.0259 - Compliance Guidelines, Restrictive Practices - Notifying an Approval or Consent to use
EXHIBIT 6-26.11 - QLD.0011.0026.0266 - Factsheet: Compliance with requirement to notify approval or consent to use restrictive practices in Queensland
EXHIBIT 6-26.12 - QLD.0011.0026.0268 - Factsheet: Chemical restraint and working with the treating doctor (for service providers)
EXHIBIT 6-26.13 - QLD.0011.0026.0276 - Factsheet: Chemical restraint
EXHIBIT 6-27.01 - QLD.0011.0026.0331 - Discussion paper on the Review of the Regulation of Restrictive Practices in the Disability Services Act 2006 and the Guardianship and Administration Act 2000
EXHIBIT 6-28.01 - QPG.9999.0001.0001 - Community Visitors - chemical restraint and medications: visiting adults in a DCCSDS or NDIS funded visitable site
EXHIBIT 6-28.02 - QPG.9999.0001.0013 - Submission to the Royal Commission into Violence, Abuse, Neglect and Exploitation of People with Disability on health care for people with cognitive disability
EXHIBIT 6-28.03 - QPG.9999.0001.0026 - Positive Behaviour Support Team, Internal Compliance Checklist Template
EXHIBIT 6-28.04 - QPG.9999.0001.0034 - Community Visitor Program, Practice Manual and Framework
EXHIBIT 6-29 - STAT.0143.0001.0001 - Statement of Janice Rushworth
EXHIBIT 6-29.01 - QLD.0003.0024.0020 - Specialist services brochure
EXHIBIT 6-29.02 - QLD.0003.0024.0022 - Positive behaviour support policy (policy no 604-4)
EXHIBIT 6-29.03 - QLD.0003.0024.0029 - Managing high risk behaviour policy (policy no 646-1)
EXHIBIT 6-29.04 - QLD.0003.0024.0039 - Safety and support networks and high intensity responses, collaborative responses to high risk and high complexity in working with children, young people and families
EXHIBIT 6-30 - STAT.0142.0001.0001 - Statement of Debora Picone AO
EXHIBIT 6-30.01 - CTD.7100.0001.0001 - Atlas 2018 Repeat analyses recommendations for antipsychotic use
EXHIBIT 6-30.02 - CTD.7100.0001.0003 - Infographic on reducing inappropriate use of antipsychotics
EXHIBIT 6-30.03 - CTD.7100.0001.0004 - Assessment data related to cognitive impairment actions
EXHIBIT 6-31 - VIC.0001.0505.2428 - NDIS Quality and Safeguarding Framework
EXHIBIT 6-32 - DRC.2000.0004.0640 - National Disability Insurance Scheme (Incident Management and Reportable Incidents) Rules 2018 (Cth)
EXHIBIT 6-33 - DRC.2000.0004.0715 - National Disability Insurance Scheme (Quality Indicators) Guidelines 2018 (Cth)
EXHIBIT 6-34 - DRC.2000.0004.0760 - National Disability Insurance Scheme (Restrictive Practices and Behaviour Support) Rules 2018 (Cth)
EXHIBIT 6-35 - DRC.2000.0004.0570 - Nationality Disability Insurance Scheme Act 2013 (Cth), Chapter 1, Part 4; Chapter 4, Part 3A; Chapter 6A
EXHIBIT 6-36 - DRC.2000.0004.0661 - National Disability Insurance Scheme (Provider Registration and Practice Standards) Rules 2018 (Cth)
EXHIBIT 6-37 - DRC.2000.0004.0545 - Guardianship and Administration Act 2000 (Qld), Chapter 5B
EXHIBIT 6-38 - DRC.2000.0004.0784 - Public Guardian Act (Qld); Chapter 2; Chapter 4, Part 2; Chapter 5, Part 4
EXHIBIT 6-39 - DRC.2000.0004.0369 - Disability Services Act 2006 (Qld), Part 6
EXHIBIT 6-40 - DRC.2000.0004.0430 - Disability Services and Other Legislation Amendment Act 2008 (Qld)
EXHIBIT 6-41 - DRC.2000.0004.0334 - Disability Services (Restrictive Practices) and Other Legislation Amendment Act 2014 (Qld)
EXHIBIT 6-42 - DRC.2000.0004.0812 - Autism Act 2009 (UK)
EXHIBIT 6-43 - DRC.2000.0004.0817 - Forensic Disability Act 2011 (Qld), Chapter 8, Part 1
EXHIBIT 6-44 - DRC.2000.0004.0821 - Health and Social Care Act 2008 (Regulated Activities) Regulations 2014 (UK)
EXHIBIT 6-45 - DRC.2000.0004.0853 - Committee on the Rights of Persons with Disabilities,'Guidelines on Article 14 of the Convention on the Rights of Persons with Disabilities: The Right to Liberty and Security of Persons with Disabilities'
EXHIBIT 6-46 - DRC.2000.0004.0146 - Hon. W. J. Carter QC, Report to Honourable Warren Pitt MP, Minister for Communities Disability Services and Seniors, Challenging Behaviour and Disability: A Targeted Response
EXHIBIT 6-47 - DRC.1000.0003.6319 - Office of the Public Advocate, Queensland Government, Upholding the right to life and health: A review of the deaths in care of people with disability in Queensland. A systemic advocacy report
EXHIBIT 6-48 - DRC.2000.0004.0001 - Australian Commission on Safety and Quality in Health Care, Literature Review - Medication Safety in Mental Health
EXHIBIT 6-49 - EXP.0040.0001.0034 - N. Lennox and R. Chaplin, 'The psychiatric care of people with intellectual disabilities: the perceptions of trainee psychiatrists and psychiatric medical officers' (1995)
EXHIBIT 6-50 - EXP.0040.0001.0040 - N. Lennox and R. Chaplin, 'The psychiatric care of people with intellectual disabilities: the perceptions of consultant psychiatrists in Victoria' (1996)
EXHIBIT 6-51 - EXP.0042.0001.0012 - Z. Ahmed, W. Fraser and M. Kerr'Reducing antipsychotic medication in people with a learning disability' (2000) 176 Br J Psychiatry 42
EXHIBIT 6-52 - EXP.0032.0004.0001 - D. Ellis, K. Shirzadi, L. Grzeskowiak and M. Angley,'Development of a novel program to facilitate monitoring physical health and adverse effects in children and adolescents prescribed antipsychotic medication'
EXHIBIT 6-53 - EXP.0032.0004.0062 - L. Grzeskowiak, D. Ellis, A. Phillips and M. Angley,'Monitoring Physical Health and Adverse Effects in Children and Adolescents Prescribed Antipsychotics'
EXHIBIT 6-54 - EXP.0036.0001.0384 - K. McVilly, S. Gelman, D. Leighton, and S. O'Nell, 'Active Support: Organisational preparation and implementation' (2011)
EXHIBIT 6-55 - EXP.0032.0004.0057 - D. Ellis and M. Angley,'Prescribing Antipsychotics in Young People and Use of a Program to Monitor Physical Health and Adverse Effects' (2013) 43(3) Journal of Pharmacy Practice and Research 190
EXHIBIT 6-56 - EXP.0032.0004.0008 - D. Ellis and M. Angley,'Women's and Children's Health Network Monitoring Package' (Web Page)
EXHIBIT 6-57 - DRC.2000.0004.0329 - J. Trollor, C. Salomon and C. Franklin,'Prescribing psychotropic drugs to adults with an intellectual disability' (2016) 39(4) Australian Prescriber 126
EXHIBIT 6-58 - EXP.0042.0001.0134 - R. Sheehan and A. Hassiotis,'Reduction or discontinuation of antipsychotics for challenging behaviour in adults with intellectual disability: a systematic review' (2017) 4 Lancet Psychiatry 238
EXHIBIT 6-59 - EXP.0037.0001.0096 - L. Dowse et al.,'Responding to Behaviour Needs in the Disability Services Future' (Discussion Paper, UNSW, 2017)
EXHIBIT 6-60 - EXP.0042.0001.0017 - R. Birch, K-R. Foley, A. Pollack, H. Britt, N. Lennox and J. N. Trollor,'Problems managed and medications prescribed during encounters with people with autism spectrum disorder in Australian general practice'
EXHIBIT 6-61 - IND.0047.0001.0017 - A. Nabhanizadeh et al.,'Effectiveness of medication reviews in identifying and reducing medication?related problems among people with intellectual disabilities: A systematic review' (2019)
EXHIBIT 6-62 - EXP.0042.0001.0162 - M. Song, R. Ware, T. Doan and D. Harley, 'Psychotropic medication use in adults with intellectual disability in Queensland, Australia, from 1999 to 2015: a cohort study' (2020) 64(1)
EXHIBIT 6-63 - DRC.2000.0004.0861 - B. McSherry,'Australia's International Human Rights Obligations' (Research Paper, Mental Health Commission of NSW)
EXHIBIT 6-64 - DRC.2000.0004.0878 - G. Szmukler, R. Daw, F. Callard,'Mental health law and the UN Convention on the rights of persnos with disabilities', International Journal of Law and Psychiatry 37(3)
EXHIBIT 6-65 - DRC.2000.0004.0873 - B. McSherry and J.J. Tellez,'Current challenges for the regulation of chemical restraint in health care settings', Journal of Law and Medicine 24(1)
EXHIBIT 6-66 - DRC.2000.0004.0893 - P. Tyrer et al,'Risperidone, haloperidol, and placebo in the treatment of aggressive challenging behaviour in patients with intellectual disability: a randomised controlled trial', Lancet 371
EXHIBIT 6-67 - EXP.0042.0001.0037 - Council of Australian Therapeutic Advisory Groups, 'Rethinking medicines decision?making in Australian Hospitals. Guiding principles for the quality use of off?label medicines'
EXHIBIT 6-68 - EXP.0042.0001.0067 - National Institute for Health and Care Excellence, 'Challenging behaviour and learning disabilities: prevention and interventions for people with learning disabilities whose behaviour challenges'
EXHIBIT 6-69 - EXP.0042.0001.0106 - Royal College of Psychiatrists, 'Challenging behaviour: a unified approach - update. Clinical and service guidelines for supporting children, young people and adults with intellectual disabilities who are at
EXHIBIT 6-70 - IND.0047.0001.0029 - Royal College of Psychiatrists, Psychotropic drug prescribing for people with intellectual disabilities, mental health problems and/or behaviours that challenge: practice guidelines
EXHIBIT 6-71 - EXP.0042.0001.0103 - The Royal Australian and New Zealand College of Psychiatrists, 'Professional Practice Guideline 4:'Off?label' prescribing in psychiatry'
EXHIBIT 6-72 - IND.0041.0001.0019 - NHS England, Stopping Over-Medication of People with a Learning Disability, Autism or Both (STOMP)
EXHIBIT 6-73 - EXP.0042.0001.0027 - D. Branford, D. Gerrard, N. Saleem, C. Shaw and A. Webster,'Stopping over-medication of people with intellectual disability, autism or both (STOMP) in England Part 1 - history and background of STOMP'
EXHIBIT 6-74 - IND.0041.0001.0031 - NHS England, Stopping over medication of people with a learning disability, autism or both (STOMP) (Web page)
EXHIBIT 6-75 - IND.0041.0001.0005 - NHS England, How to support STOMP (Web page)
EXHIBIT 6-76 - IND.0041.0001.0016 - NHS England, Professional resources (Web page)
EXHIBIT 6-77 - IND.0041.0001.0037 - Voluntary Organisations Disability Group, STOMP Pledge for Social Care
EXHIBIT 6-78 - IND.0041.0001.0008 - NHS Health Education England, The Oliver McGowan Mandatory Training in Learning Disability and Autism (Web page)
EXHIBIT 6-79 - ISS.001.00331_02 - Pharmaceutical Society of Australia,'Submission to Royal Commission into Violence, Abuse, Neglect and Exploitation of People with Disability'